How has all this affected you? I was speaking to a dad recently who is a contractor. He has a child that just turned 22 and he is having trouble finding services, because there are limited resources after your child is no longer on an IEP. His child has not been given enough skills to live independently; and now, this dad is having trouble working full time because he has to stay home and help his child. He is trying to provide financially, while also trying to help physically in person. This is tough to balance for anyone; and as you can imagine has created a lot of stress for him, and probably his child as well.
How does that make you feel now? Well, I know I have been frustrated for years; and I bet many of you are as well. These are our kids. This is their future. What happens when we are no longer here to help support them? Where will they live? Who will help take care of them? - their finances, their health, and more. Many people are very worried about how this all works out. We need more clarity.